prayers for a dear child, and her heartbroken family

This post is going to be one that will possibly upset you

in some form, it is written with the permission of the beautiful

8 year old child's parents I am about to blog about.

Sharing their pain, their little girls pain is not an easy task for

them to decide and yet they not only give me permission

to share but thank me because in writing the blog,

awareness for this disease will be spread.

PAIGE LACOMBE

PAIGE LACOMBE

PAIGE LACOMBE

Remember it, recite it, pray it, follow it on Facebook.

Paige is a beautiful, talented little girl who is 8 years old

and not only fighting for her life, but suffering quite a bit right now.

Baby boy and KD were the first to tell me about sweet Paige.

BB was pretty shook up about her as

he is beginning a new position where her daddy works

and knows her Mommy because she works at the training center

where he attends.

He texts me one morning asking me if I have every heard of

Steven-Johnson's Syndrome and the more

rare form of it called Toxic Epidermal Necrolysis.

He gives me the facebook site to follow

(Paige Lacombe Updates)

and horror fills me as I read of this dreaded disease and

what it does to its victims.

On the short form, it begins as an allergic reaction

to a medication that causes third degree burns to the body

both inside and out. It spares no areas and yet

it has the luxury of not effecting the brain so that

all of her suffering is not forgotten or not felt by a little child.

Her Parents are on a terrible roller coaster ride with their

sweet oldest child hanging off the side.

Paige had 80% of her body affected, was in ICU for 

many days and now, having just had her 6th surgery 

all in hopes to save her sight, her parents are beside themselves.

Having two other children, ages 3 and 10 months, 

makes it even harder to be away from Lafayette, where they live,

and stay in Texas children's burn center.

Imagine, having your child critically ill, in ICU,

they shave her head in hopes of causing less infection,

they put special contacts in her eyes to stop her blindness,

a feeding tube because you are told that what they see on the

outside is what is also happening on the inside.

Enough, right? and yet they live it each day

I speak often of the "helicopter view" God has

over all of us, what makes no sense to us here,

God can see from a higher view, I don't believe

He causes suffering in his favorite, His children,

but there has to be a reason or none of this makes sense.

Paige is living through this possibly for the lessons 

it will give to someone else. 

Lessons of courage of a little girl and her awesome parents.

I cringe as I read this morning the pain of her mothers writings.

A parent's worse nightmares.

Having been a critically ill child I share with Paige's parents

that for me, most of my memories are the good ones from that time.

Resilience is something an ill child has and others wonder where

that came from. They are right, Paige will be forever changed,

never to be the little girl she was before, but in exchange,

when this is all over, she will be a new and improved version

of her former self. She will be kinder and caring,

very sensitive to the suffering of others and in turn,

will help so many people in our world. She is a special child,

special parents. I read in awe of this family's bravery, courage

and also their honesty when sharing their life with us right now.

It takes a special family to be able to put it all out there for

the world to see, the good, the bad, the ugly but

always, always, always, the hope, the faith, amazing!

 Prayers for all, add to prayer lists,

add to your nightly prayers, dedicate your masses to Paige and

her family. 

Many have already been changed by this little girls bravery 

as well as her parents.