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Tuesday, October 5, 2010

FEMMES NATALES RUNABOUT


This weekend our community once again
saw the outpouring of love and support of
the organization called FEMMES NATALES.
Yes, on Saturday morning many met at Peltier Park
all in the name of Gina B. my dear friend who has
Lou Gehrig's disease.
Although I didn't make the race itself,
my school of TES reached out and campaigned to
make sure this years race was the very best.
The organization gives 100% of their earnings to
the family who has been picked for the year.
I do not know what the total raising was but
I hear it was one of the best years yet.
Why? Probably because Gina B. has meant so much
to so many. This quiet, kind teacher has reached so many lives
that everyone wanted to do their part to help her.
This is one way that she could be helped.
Early in Gina B's journey, before we knew where this road
was going to take her, we prayed for a remission of sorts.
Where the "devil disease" would go into a remission and
slow it's progression. We just knew she would be that one
that had a good 10 years before she had to think of
needing daily help.
It was clear earlyon, that this devil was not going to give her that.
Still, Gina B. at first was having trouble accepting help
from others. She and I spoke about how she didn't feel at the
time that she needed any help from outside, from the
community. I laid it on the table for her and she cried.
I said, " Gina B. this is not fair to us who want to help.
I know that if anyone else in your large circle of friends
had gotten this diagnosis rather than you, you would be
the first to be figuring out what could be done for the person.
You would be using any free minute to help this person yet,
here you are being the one who needs the help and you
are denying us in helping. You are stopping others from
doing God's work, you are stopping us from being the
disciple that God demands from us."
She cried, my Gina B. because sometimes I am a little rough
with my honesty. I believe she cried though because she
knew what I was speaking was the truth.
I am not sure if this conversation had anything to do with
her change of heart but not long after this our Gina B.
admitted to many "I HAVE ALS, LOU GEHRIG'S"
and help poured from every crack and crevice of our
community. Femmes Natales was only one of the
miracles that have transpired.
If you are asking "What can I do?"
Well, you can pray, pray for my dear friend Gina B.
who most days has a new struggle to face yet
always, always has a smile on her face.
Is always teaching us how to face a day the way
God is asking us to do.
If you are in a position to donate even one trip
to the McDonald's drive up,
there is an account at every Capitol One Bank.
Simply go there and give her name"
Gina Hebert Bonvillain Blanchard
and donate.
Also, when Gina B. was first diagnosed I started a letter
campaign for all to flood the mail carriers with
cards of well-wishes to our Gina B.
she loves getting these cards and saves each and every one.
Drop a card to Gina B. even if you don't know her personally.
Keep the mail system in business since I hear they are facing cuts
GINA BLANCHARD
306 BAYOU RESERVE
THIBODAUX, LOUISIANA 70301
Have your children do art work and send it to her.
She saves each and every one of them.
Most important of all spoken of?
Well, Gina B. says that would be prayers....
pray for God's will, for one of those miracle we read
about in the Bible, for acceptance for whatever may come.
Thanks for all you may do to help my friend,
Gina B.

Monday, October 4, 2010

IT'S NOT EVERY DAY YOU TURN 92

On October 1st my Uncle Luke turned 92.
Yesterday our family was invited to my cousin, Chris' house
here in Thibodaux to celebrate.
Because the rest of the siblings were all tied up I was
fortunate enough to be the one to take Mumsie to
be with her brother.
It could not have come at a better time since
lately she has been talking a lot about him and
saying she misses him and has been dreaming about him.
My cousins didn't tell Uncle Luke that Mumsie was coming,
she was the surprise and just like each time they are together,
he got teary-eyed when he saw her and they hugged like
they hadn't seen each other in years.
They were so cute together, if he sat in the kitchen, she sat
in the kitchen. If he sat to watch the Saints game, she did also.
Probably just like the little children they were, she was
the baby sister, the tag-a-long.
My second and third cousins, Uncle Luke's grandchildren
and great grandchildren were there to share the day.
This picture shows Celeste dragging little Luke down
the steps because he didn't want to join in the blessings.
He reminds me much of our Owen.
Father Dean came to celebrate and so our blessing
was extra special.
Uncle Luke does 92 really well.
I hope if I got their genetic make up that I carry it as
well as he does.
90 and 92, 182 years between the both of them.
They are so darn cute together.
Uncle Luke asks Mumsie,
"What happened to your hair"
"My hair?" she asks, "What is wrong with my hair?"
"It's all white"
Mumsie in her cute sassy voice,
"Huh, at least I have hair"
My cousin, Chris who is also principal of St. Genevieve
Catholic school also has this awesome house and yard.
A home she and her husband, Jimmy and the daddy's built
to look like an old Cajun home.
I was in love with the scenery.
This is an old storage building that they had moved there.
It would be my dream home if it were on the lake where
I will spend my retirement years.
Her greenhouse is made all of old window panes, lovely,
simply lovely...
I always tease my Uncle Luke that I am his favorite
niece and he always goes along with the joke...
so maybe it's true.
We are never together where he doesn't share
an Uncle Freddie, my daddy, story.
Yesterday the story is
Uncle Freddie he was a special kind of man.
Often he would tell my Uncle Luke,
"Luke, those kids of mine, they drive me crazy,
but I love them, each and every one of those
kids of mine"
What a great day it was.

Sunday, October 3, 2010

IT'S NOT EASY BEING A SUPERHERO

Yes, It is not easy being a superhero.
This week I am called to a classroom where a good
teacher holds a little one in her lap.
There on his forehead is a huge lump.
It seems like he ran into play equipment at recess
and now has a hematoma.
I take him with me to my office.
I already know that a bump this large on the head
will call for a parent pick up. He will have
to be watched closer than what we can do here at school.
Nap time is not convenient for a child with a bump on his head.
I call his good mother and she is on her way.
We go upstairs to await his parent.
This is how the conversation goes...
(SH will be his word, super hero)
SH: I JUST DON'T KNOW HOW THIS HAPPENED
ME: IT'S OKAY MY LOVE IT WAS JUST AN ACCIDENT
SH: NO I WAS A SUPERHERO, SUPERHERO'S DON'T
HAVE ACCIDENTS"
ME: WELL I THINK YOU WERE STILL A SUPERHERO
YOU HAD A SERIOUS BUMP AND YOU DIDN'T CRY
SH: (looking at me as though I know nothing about superheros)
SUPERHERO'S CRY THAT IS NOT WHY I DIDN'T CRY
ME: WOW, YOU ARE PRETTY STRONG, WHY DIDN'T YOU CRY?
SH: WHY I DIDN'T CRY? THAT IS EASY.
I DIDN'T WANT TO GET ANY TEARS ON THIS NEW
NEW UNIFORM PANTS"
Well, that is so simple coming from a superhero, I
should have known that.
So from now on, I am going to try and be a superhero.
Just like I am listening to Joel Olsteen right now,
I am going to see and speak of myself well.
I am going to have the mind of a superhero.
No time for tears, can't stain a uniform with tears.

Saturday, October 2, 2010

Fun on the homefront with three of my favorite girls

(pictures are not in the order I wanted but still
cannot figure out how to change the order of pictures
so enjoy the gangsta poker faces of my girls)

Yesterday when I got off of work,
Kd, baby girl, and Melissa-kd's cousin
were ready to play.
We started by going to my new favorite place
to hang out, Inspire-a scrap boutique.
It was Melissa's first trip and since I gave
her a gift certificate for her baby shower,
she was itching to get her some baby album stuff.
We ate at WOW, visited sister, Taunt Mone
in the hospital and then headed home to get some
scrapping done. Can I say that this is the best
way I love spending Friday nights?
With people I love and scrapping.
Fun, fun, fun!!!
So here we are, getting our scrap on...
BG found spider tattoos and since the other two girls
were sporting pregnant bellies, she wanted in...
Kd cannot wait to have the belly cousin Melissa has
but insisted we get a picture of who I call Eskimo Pie
and she and baby boy calls Peafly....
Now Melissa, her oven is baking really good these days.
She is so darn cute carrying her little basketball there.
She is due in December and growing so darn good.
Yes, the only way to scrap, spread it all out and play, play, play!
Having the scrap room makes it so much easier to scrap in
the way we like to do it.
Conversations as we scrapped flowed to all kinds of topics.
Then we put the IPOD on and sang, sang, sang to old
songs that brought back memories of times past.
Each song that came on the girls reminisced at what
part of their lives they were at when the
song was popular. We sang loud.... and yes, the girls
had to put their Poker faces on,
hence the first picture on this post.

Friday, October 1, 2010

hope in the field of chronic back pain

When it comes to the back pain that has become
part of my life, a thorn in my side,
what causes me not to live the life I want,
I have tried and "seen them all"
or so I thought.
I have seeked the opinion of orthopedist,
chronic pain doctors, family doctors, physical therapists.
I have gotten opinions from chiropractors, spine specialist and even
took a trip all the way to Tennessee to hear what
specialist on the subject of survivors of childhood cancer
had to say about my issues.
I have read books on the subject and am even seeing
a counselor trying to accept this part of my life.
On a pretty good day, I can live with the fact
"such is my life" but on a bad day my mind always
believes there has to be something that can be done.
It is on those days that I grasp at straws and look for
another opinion different from the ones I have gotten before
which basically all say there is nothing that can be done
but take pain medications, exercise, loose weight
and wait for the day that you are no longer able to do your job
and retire. I was almost resigned to the fact that this
is what I needed to do but Dr. Cowen at the spine center
convinces me that before I resign to this I need to at least
hear what a neurosurgeon has to say.
Another doctor to add to my list but being the ultimate
optimist, what do I have to loose.
Yet this visit yesterday is different.
Not to mention that Dr. Donner is very knowledgeable in
his field and has a very good bedside manner,
he is also very handsome.
We first discuss all that has been done before
and my frustration over accepting that this is my fate.
He kind of chuckles when I tell him I am seeing a counselor.
I am not sure why but this seems to be the reaction
most often when I mention this.
He has reviewed my brand new MRI and talks
about am I really ready for this huge back surgery
for scoliosis that is really not that bad.
I question whether the MRI showed the spondyolisthesis
that many say are part of my severe pain and he admits
that the MRI does not show this.
I then show him the report of the CT scan that I had
in 2007 and as he reads this his whole facial expression changes
and he brings me to his office to pull the films of the CT scan
to view them together on his computer.
He sounds energized as he says and shows me,
"Here it is, here is the cause of the pain you have"
Wow, I see it. He gives me a quick lesson on bone formation
and what has happened as my bones formed.
There is a slippage of two bones that have causes
the spiny portions of the outer spine to not only
rub together but from the constant friction have
caused fractures in the spiny bones that are on the
outer part of the spine.
A Pars defect that can be surgically fixed.
He is confidant that this is the cause of the majority of
my pain and he is insistent that this can be fixed.
we discuss a lot in the half hour I am there.
I talk of my fears of back surgery and that I don't
know many people who have back surgery who still
need pain and what if my pain is more due to the
radiation I received.
He matter of factly explains that he knows the majority
of my pain is this problem he is not saying that the other
issues do not cause some pain but the severe pain
is this. Unlike what an orthopedist has talked to me
about a while back there will be no big cuts no big rods,
no trying to straighten a spine that is crooked.
He would simply go in and fix this Pars defect
and fuse the spinal fracture so that there would no longer
be this slippage that he shows me a few times on scan.
I love this doctor, he is the first one I have ever spoken to
who offers me some form of pain relief and speaks
with the confidence I need. I also had a bone density
so I question whether the bones are strong enough to
handle a fusion and he says although there is bone
thinning as seen in osteoporosis he reminds me
that the elderly who fracture their hips are most usually
caused from brittle bones and yet rods and healing take
place with these people.
Yes, he is right, I can heal no matter how weak the bones are.
Then he sits me down and gets to the real "nitty gritty"
part. His best prognosis patients are the ones he can
do via the abdomen. It is on the side of where the defect is
and patients have a better outcome when the surgery is done
this way and out of all the patients he does this way,
50% have complete pain relief, are off all pain medications
and are able to resume a full time job after recovery.
Out of the other half, most still work and some need pain medications
but the pain is minimal to what they experienced before and
all work. Very few do not have improving of their quality of life
but those he doubted, because of their mental thoughts and
having a narcotic issue, would do well anyway.
He says that someone with my optimism should do well.
The big doubt though is whether or not he can do this surgery
via my abdomen due to all the scar tissue and intestinal issues,
it may make this impossible to do the surgery in this way.
He sets me up to see Dr. Marino who is the general surgeon
he works with and who happens to be the doctor who follows
my bowel obstructions to make the decision as to whether
the surgery can be done this way.
He assures me that if we proceed with this type of surgery that
Dr. Marino would also scrub in as assistant in case the bowel
becomes a problem.
If he feels this cannot be done then we will talk again about
whether or not I should do the repair going through the back.
His reasoning for this is that this way of doing the surgery
does not have the better outcome that he would want for me.
There is a harder recovery and most patients are still left
with chronic pain issues. It may not be as bad as it is now
but he wants to be honest with me as we discuss and prepare
to move forward with this surgery.
He relieves my mind when I say I so want to be healthy and
I have been frustrated because Physical therapy, chiropractics
has not helped me and I know if I lost weight I would have less pain.
He reminds me that this problem will not be resolved or
pain will not be lessened by any of those things.
Because there is this defect and this fracture,
it is like having a broken bone that will not heal
and after so many years of stressing on it, the pain
is there. I leave there with a hop in my step
because this is the best news I have had in such a long time.
When I shared with him that just saying that I may never
nurse again makes me cry he explains that this is his
number one reason for doing back surgery.
When a patient expresses to them that their quality
of life is being affected, he decides it is time to do
surgery. So this morning I am trying not to get my
hopes up too high but very very optimistic in this news
and what this doctor has offered me.
Sorry for the long post but so much easier to
post it here one time than telling my huge family this
so many times.
Wish me luck as I move to a new adventure
and the belief that I can be well, I can have pain relief.
Oh what a good day this Friday is becoming!!!